Data Use Agreement
Predictive Health Institute - The Center for Health Discovery and Well Being
Introduction
The Predictive Health Institute is committed to rapid and complete data release, and to ensuring that the data remain available to all qualified Emory users at no cost. A fee may be assessed to Emory users with complex requests. Notification of any possible fees will be given before data extracts are performed. Individuals or organizations without Emory affiliation are eligible to request Predictive Health data. The request will be reviewed on a case-by-case basis with no assurances given in advance that permission will be granted. Fees may be assessed depending on the quantity, complexity, and composition of data requested. IRB approval from the appropriate oversight committee is required for non-Emory users.
Request data access
Access to the Predictive Health research database and associated biological samples is gained by application to the research access and data subcommittee. Completion of the following form is required for consideration. Indicate on the form by checking the appropriate boxes which sets of data you are requesting. Submit the completed form accompanied by your research protocol or detailed description of intended use of the data. The request will be reviewed by the Predictive Health data review committee generally within 10 days of submission. If approved, the data extraction will be made available to you approximately three weeks after your submission. Data extractions may be formatted as Excel, SAS, and SPSS files.
Data are meant for research purposes only. It is expected that data will be used in support of funded research activity, either in support of a grant or in generating preliminary data for a grant proposal. Requests that do not, in the judgment of the review committee, adequately support the research purpose will either be returned for revision or rejected. Individuals who have a request rejected are eligible to submit other requests with each again subject to committee review.
Emory University and the Predictive Health Initiative retain ownership rights to all provided data regardless of the purpose or outcome of any subsequent publications or collateral works.
*** ALL papers/manuscripts must be sent to the Predictive Health Data Review Committee for review prior to being submitted for publication (send to chdwb@emory.edu). ***
Acknowledgements
Any publication, presentation, or any document that includes direct or derived information from the Emory Predictive Health Database must include the following statements:
"This work is based on information from the Emory Predictive Health Institute and Center for Health Discovery and Well Being Database."
"Supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under Award Number UL1TR002378. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.."
Any publication, presentation, or any document that includes direct or derived information from the "laboratory - general" data must cite Quest Diagnostics.
Researchers will retain rights to their research product but not the primary data. No restrictions on future, ongoing research work from the data base is implied or possible from this agreement.
The Emory University and Predictive Health Institute data base will be acknowledged in all publications or communications where primary or derived data are used.